Kumi Uri – Support for People Living with Atopic Dermatitis

Some people are handed hardship and survive it. Others transform hardship into a force for growth. This is our path as parents.

In 1994, our daughter was born. Shortly after her birth, a rash appeared on her skin and spread relentlessly. Her condition deteriorated rapidly. She was hospitalized repeatedly, while doctors struggled for a long time to diagnose and stabilize her illness. Constant itching, worsening skin, and declining health turned a young child’s life into daily pain.

We refused to surrender. Our search for answers led us across continents, including the United States, Germany, France, Switzerland, and the United Kingdom. We pursued conventional medicine as well as alternative approaches, learning often painfully to distinguish evidence-based care from empty promises.

From this journey, a deeper calling emerged. As her mother, shaped by lived experience, I chose to move beyond coping and to become a professional advocate. I trained as a psychotherapist (M.A.) and later qualified through EUPATI, the European Patients’ Academy on Therapeutic Innovation, with a focus on patient involvement in medical research.

This unique combination of personal experience and professional training allowed me to bridge the gap between patients and physicians, families and researchers, lived reality and scientific progress. I began supporting other families affected by atopic dermatitis with clarity, practical tools, and partnership.

Kumi Uri was founded so that families no longer have to walk this path alone. What began as one family’s struggle became a shared mission to turn pain into knowledge and experience into light.
Behandlungsoptionen

The skin is just the outer layer.

ATOPIC DERMATITIS – MORE THAN A SKIN CONDITION

Atopic dermatitis is a chronic inflammatory skin disease characterized by severe itching, dry skin, and recurring flare ups. It affects sleep, daily life, and the social lives of children, adults, and entire families. Many people affected experience exhaustion, insecurity, and a lack of understanding. This is exactly where Kumi Uri comes in.
What Kumi Uri provides

What Kumi Uri provides

  • Information:

    • concise explanations of the condition, triggers, flare-up patterns and care principles.

    • Guidance:

    one-on-one support for parents and adults, structured group sessions and practical tools for home routines.

  • Community:

    • moderated peer groups, school and community awareness efforts and support in handling social challenges.

  • Programs:

    • workshops, lectures and the therapeutic summer program in Davos for children.

    Click here for TWINT

    Payment Slip

    Kumi Uri QR Code

    TREATMENT OPTIONS

    Kumi Uri does not replace medical professionals. We help families understand different treatment approaches, so they are aware of the available options and know which questions to discuss with their dermatologist.

  • Basic care:

    • moisturizing routines, skin-barrier support and trigger management.

  • Flare-up treatment:

    • anti-inflammatory creams, treatment of secondary infections and symptom control.

  • Advanced options:

    • Non-steroidal creams that reduce inflammation without steroids.


    Light therapy under medical supervision to reduce itching and redness.


    Biologic medications, given by injection, that target specific immune pathways.


    JAK inhibitors (Janus kinase inhibitors), in tablet or cream form, are medications that specifically block enzymes in the immune system responsible for transmitting inflammatory signals, thereby reducing chronic inflammation and itching.

    Daily-life support

    Guidance for sleep disruption, school integration, clothing and materials, environmental triggers and stress-related aggravation. The focus is on stability and clear routines.
    Click here for TWINT

    Payment Slip

    Kumi Uri QR Code

    Dealing with discrimination

    Many children and adults experience rejection or stigma because of visible skin symptoms. Kumi Uri counters these forms of exclusion through education in schools and communities and strengthens those affected in social situations.
    About the founders

    Summer Camp in Davos

    A structured program for children with Atopic Dermatitis combining daily skin treatment, emotional support and activities that build resilience. Davos offers clean, low-pollen, low-polluting air and a long medical tradition in treating skin and allergy conditions, making it a favorable environment for stabilizing the skin.
    Refrence letters

    Disclaimer

    The content of this website is intended solely for general information and does not replace medical diagnosis or treatment. Decisions regarding therapy, medication, or diagnostics should always be made in consultation with a qualified dermatologist who is familiar with the individual medical situation.

    Project Video

    Scroll to Top